Rare doesn’t mean alone. Together, we’re
turning awareness into action and hope into
impact.
We design and sell handmade jewelry at local markets to raise funds for rare disease research and awareness initiatives.
We host restaurant fundraisers, organize blanket drives, and donate care packages to support patients and families affected by rare diseases.
We share our story and raise awareness by speaking at schools, community events, and online spaces, encouraging others to learn and get involved.
Rare Disease Club
Empowering awareness through education and community.